Barth Syndrome Foundation - http://www.barthsyndrome.org Promotes knowledge about this disease among families, physicians and scientists, serving as a focal point for data and research for scientists. The group offers support to families learning to cope with the disorder.
NINDS - Barth Syndrome Information - http://www.barthsyndrome.org Information sheet compiled by the National Institute of Neurological Disorders and Stroke.
The Complete Barth Syndrome Homepage - http://www.barthsyndrome.org List of clinical symptoms, history of the condition, current news, and links to support groups.