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National Organization for Rare Disorders, Inc.  -
Information about NORD, its programs, special events and the variety of services offered. Includes a rare disease, organization and orphan drug database. Diseases are listed alphabetically for easy searching.
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Cherubs - http://www.cherubs-cdh.org
A non-profit support group for the families and medical care providers of children and adults born with Congenital Diaphragmatic Hernia.
Status Code: 301 - Location: http://www.cdhsupport.org/ Edit listing [dmoz.org] - Report dead link [dmoz.org] - Edit Category [dmoz.org] |
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Contact a Family - http://www.cafamily.org.uk
Information about this organization as well as the CaF directory of specific conditions and rare disorders. Also details about the Rare Disorders Alliance - UK.
Status Code: 302 - Location: http://www.cafamily.org.uk/index.php?section=861 Edit listing [dmoz.org] - Report dead link [dmoz.org] - Edit Category [dmoz.org] |
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European Organisation for Rare Diseases - http://www.eurordis.org
Alliance of patient associations dedicated to improving the quality of life of all people living with rare diseases in Europe.
Status Code: 302 - Location: http://www.eurordis.org/secteur.php3?id_rubrique=1 Edit listing [dmoz.org] - Report dead link [dmoz.org] - Edit Category [dmoz.org] |
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Fibrous Dysplasia Support Online - http://www.eurordis.org
For those seeking support and information concerning the rare bone diseases: fibrous dysplasia, McCune Albright Syndrome and Cherubism.
Status Code: 200 Edit listing [dmoz.org] - Report dead link [dmoz.org] - Edit Category [dmoz.org] |
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Human Growth Foundation - http://www.hgfound.org/
Information about growth-related disorders through education, research, and advocacy. Member driven organization.
Status Code: 200 - Location: http://www.hgfound.org/index.html Edit listing [dmoz.org] - Report dead link [dmoz.org] - Edit Category [dmoz.org] |
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Information Centre for Rare Diseases and Orphan Drugs - http://www.hgfound.org/
Offers an Internet portal. Includes news, forums, rare disease and orphan drug information and registration forms
Status Code: 200 Edit listing [dmoz.org] - Report dead link [dmoz.org] - Edit Category [dmoz.org] |
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Kindler Syndrome - http://www.hgfound.org/
An article and case study of this rare disease. Includes links.
Status Code: 200 Edit listing [dmoz.org] - Report dead link [dmoz.org] - Edit Category [dmoz.org] |
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Office of Rare Diseases - http://www.hgfound.org/
Information on more than 6000 rare diseases, including current research, publications from scientific and medical journals, completed research, ongoing studies, and patient support groups.
Status Code: 200 Edit listing [dmoz.org] - Report dead link [dmoz.org] - Edit Category [dmoz.org] |
