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Acute Intermittent Porphyria Forum -
Information and links about Porph. Includes registration form for an email list.
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Canadian Porphyria Foundation -
Mission statement, objectives of the organization, newsletters and safe and unsafe drugs. Also: A Guide to Porphyria - a complete booklet of information.
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Diagnosing the Porphyrias - http://www.ohsu.edu/som-hemonc/handouts/deloughery/por.shtml
An article by Thomas G. DeLoughery, Associate Professor of Medicine.
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EPP - http://www.ohsu.edu/som-hemonc/handouts/deloughery/por.shtml
Short for Erythropoetic ProtoPorhyria, which is a rare metabolic disease. A personal site about this disorder, one of the family of porphyrias.
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King George II and Porphyria - http://www.ohsu.edu/som-hemonc/handouts/deloughery/por.shtml
Talks about the symptoms of porphyria affecting King George III who ruled England during the American revolution.
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Me and AIP - http://www.ohsu.edu/som-hemonc/handouts/deloughery/por.shtml
Acute Intermittent Porphyria. A personal experience with this disease touching on nutrition, diet, doctors and a healthier safer chemically free environment.
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Pediatric Oncall - http://www.ohsu.edu/som-hemonc/handouts/deloughery/por.shtml
Information on porphyrias including the various types and its management.
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Porphgroup - http://groups.yahoo.com/group/porphgroup/
An e-mail group at Yahoo dealing with the metabolic disease porphyria.
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Porphyria - http://groups.yahoo.com/group/porphgroup/
A look at the different types of these disease and some of their characteristics.
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Porphyria - http://groups.yahoo.com/group/porphyria/
From Yahoo Groups. E-mail list for people with Porphyria. Friends, families and care givers are welcome.
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Porphyria Page - http://groups.yahoo.com/group/porphyria/
A patient guide for all people with this disorder. Compiled by Professor Michael Moore.
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Porphyria: The Unknown Disease - http://groups.yahoo.com/group/porphyria/
Genetic metabolic disorder. Overview of types, testing and diagnosis, and links.
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Porphyrias: Diagnosis and Treatment - http://groups.yahoo.com/group/porphyria/
Clinical manifestations, diagnosis, etiology and treatment of six types of porphyrias are discussed.
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Suite 101 - http://groups.yahoo.com/group/porphyria/
Offers links and articles about Porphyria.
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