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CajunHeart -
Kim Bourg describes her life with the condition, and suggests strategies for coping with it in oneself or others. Includes details of symptoms and diagnosis.
Status Code: 200 Edit listing [dmoz.org] - Report dead link [dmoz.org] - Edit Category [dmoz.org] |
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Friedreich Ataxia Research Association - http://www.fara.org.au/
Summarises recent progress in ataxia research and the search for better treatment.
Status Code: 200 - Location: http://www.fara.org.au/index.htm Edit listing [dmoz.org] - Report dead link [dmoz.org] - Edit Category [dmoz.org] |
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Friedreich's Ataxia Fact Sheet - http://www.fara.org.au/
A resources guide and fact sheet compiled by NINDS, the National Institute of Neurological Disorders and Stroke.
Status Code: 200 Edit listing [dmoz.org] - Report dead link [dmoz.org] - Edit Category [dmoz.org] |
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Friedreich's Ataxia Parents Group - http://www.fara.org.au/
With advice for new parents on the disease, and on how the parent might better cope emotionally.
Status Code: 200 Edit listing [dmoz.org] - Report dead link [dmoz.org] - Edit Category [dmoz.org] |
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Friedreich's Ataxia Research Alliance - http://www.faresearchalliance.org/
Non-profit organization dedicated to the pursuit of scientific research leading to treatments and a cure.
Status Code: 301 - Location: http://www.curefa.org/ Edit listing [dmoz.org] - Report dead link [dmoz.org] - Edit Category [dmoz.org] |
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Friedreichs Ataxia Society Ireland - http://www.faresearchalliance.org/
Voluntary organisation providing support to anyone affected by genetic ataxias. Includes events calendar, membership details, and information on accessibility issues.
Status Code: 200 Edit listing [dmoz.org] - Report dead link [dmoz.org] - Edit Category [dmoz.org] |
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GeneClinics: Friedreich Ataxia - http://www.faresearchalliance.org/
An in depth look at this disorder. Includes a summary, diagnosing, molecular genetic testing, clinical description and management.
Status Code: 200 Edit listing [dmoz.org] - Report dead link [dmoz.org] - Edit Category [dmoz.org] |
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Matt's Mansion - http://www.faresearchalliance.org/
Describes his life with the condition, and his travels in a wheelchair. Includes information for any disabled person considering foreign travel.
Status Code: 200 Edit listing [dmoz.org] - Report dead link [dmoz.org] - Edit Category [dmoz.org] |
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NORD: Friedreich's Ataxia - http://www.faresearchalliance.org/
Offers the synonyms, a general discussion and further resources.
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Not Going Quietly - http://www.faresearchalliance.org/
A personal account of diagnosis, daily life, challenges, and international travel. Includes details of treatments, and a photograph gallery.
Status Code: 200 Edit listing [dmoz.org] - Report dead link [dmoz.org] - Edit Category [dmoz.org] |
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Patient loses right-to-food fight - http://www.faresearchalliance.org/
The BBC reports that a man with Friedreich's ataxia has lost the last stage of his legal fight to insist on his being fed artificially in the final stages of his life.
Status Code: 200 Edit listing [dmoz.org] - Report dead link [dmoz.org] - Edit Category [dmoz.org] |
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Swiss Association of Friedreich Ataxia - http://www.achaf.org/
Parents and friends of patients campaigning for better treatment for ataxics in Switzerland; also sharing news and information about the condition and current research.
Status Code: 200 - Location: http://www.achaf.org/default.htm Edit listing [dmoz.org] - Report dead link [dmoz.org] - Edit Category [dmoz.org] |
