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Elizabeth's Page - http://www.our-sma-angels.com/elizabeth/
Elizabeth has Spinal Muscular Atrophy Type 1. She is in a clinical study at Stanford for SMA type. She has beat the odds. Read about her journey through life.
Status Code: 200 - Location: http://www.our-sma-angels.com/elizabeth/index.html Edit listing [dmoz.org] - Report dead link [dmoz.org] - Edit Category [dmoz.org] |
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Families of SMA (Spinal Muscular Atrophy) - http://www.our-sma-angels.com/elizabeth/
International support group and resource center for this disease, includes current research.
Status Code: 200 Edit listing [dmoz.org] - Report dead link [dmoz.org] - Edit Category [dmoz.org] |
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FightSMA - http://www.our-sma-angels.com/elizabeth/
Organization raising public awareness and funds for research. Features disease fact sheets, a message board, merchandise, and research updates.
Status Code: 200 Edit listing [dmoz.org] - Report dead link [dmoz.org] - Edit Category [dmoz.org] |
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GeneClinics SMA Information Page - http://www.our-sma-angels.com/elizabeth/
Overview of SMA, its genetics, clinical presentation and testing. It is written by experts in SMA research and genetic testing.
Status Code: 200 Edit listing [dmoz.org] - Report dead link [dmoz.org] - Edit Category [dmoz.org] |
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Ilsa's SMA Resources - http://www.smaangel.com
A detailed description, news and links with information about Spinal Muscular Atrophy. A personal story of a baby, Ilsa.
Status Code: 200 - Location: http://www.smaangel.com/index.html Edit listing [dmoz.org] - Report dead link [dmoz.org] - Edit Category [dmoz.org] |
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Jennifer Trust for Spinal Muscular Atrophy - http://www.smaangel.com
Providing support, information and research news for UK families.
Status Code: 200 Edit listing [dmoz.org] - Report dead link [dmoz.org] - Edit Category [dmoz.org] |
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Our SMA Angels - http://www.our-sma-angels.com
Large on-line source of information and inspiration regarding children with SMA. See their faces, read their stories, remember those who have passed and fight with those who are fighting.
Status Code: 200 - Location: http://www.our-sma-angels.com/index.htm Edit listing [dmoz.org] - Report dead link [dmoz.org] - Edit Category [dmoz.org] |
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SMA Angels Support Site - http://www.our-sma-angels.com
A place for people to find support for Spinal Muscular Atrophy (SMA) / Werdnig-Hoffman.
Status Code: 200 Edit listing [dmoz.org] - Report dead link [dmoz.org] - Edit Category [dmoz.org] |
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SMA Support Inc. - http://www.our-sma-angels.com
A tax-exempt, not-for-profit organization dedicated to providing information and support to family, friends, individuals and caregivers on all aspects regarding the genetic disease SMA.
Status Code: 200 Edit listing [dmoz.org] - Report dead link [dmoz.org] - Edit Category [dmoz.org] |
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SMA2 Ian Paul - http://www.our-sma-angels.com
I am two years old and I have SMA2.
Status Code: 200 Edit listing [dmoz.org] - Report dead link [dmoz.org] - Edit Category [dmoz.org] |
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Spinal Muscular Atrophy Foundation - http://www.our-sma-angels.com
Information on SMA, and the latest updates in research, treatment and funding.
Status Code: 200 Edit listing [dmoz.org] - Report dead link [dmoz.org] - Edit Category [dmoz.org] |
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The Sean W. Venezia Foundation - http://www.our-sma-angels.com
Dedicated to fighting spinal muscular atrophy by helping fund research for treatment and a cure, and providing support to families affected by SMA Type I.
Status Code: 200 Edit listing [dmoz.org] - Report dead link [dmoz.org] - Edit Category [dmoz.org] |
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Theo's Story with SMA - http://www.mysunrise.ch/users/af.mast/
A personal story of a family with a son Theo, suffering from Spinal Muscular Atrophy. Site also in French.
Status Code: 302 - Location: http://www.sunrise.ch/mail Edit listing [dmoz.org] - Report dead link [dmoz.org] - Edit Category [dmoz.org] |
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Tori's Buddies - http://www.mysunrise.ch/users/af.mast/
Canadian Chapter of Andrew's Buddies, fighting Spinal Muscular Atrophy SMA.
Status Code: 200 Edit listing [dmoz.org] - Report dead link [dmoz.org] - Edit Category [dmoz.org] |
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Twins with SMA - http://www.mysunrise.ch/users/af.mast/
Sam and Alex Bolton - twins with spinal muscular atrophy. Find information and support for SMA sufferers as well as fund raising efforts.
Status Code: 200 Edit listing [dmoz.org] - Report dead link [dmoz.org] - Edit Category [dmoz.org] |
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Washington University of St. Louis: Neuromuscular - http://www.neuro.wustl.edu/neuromuscular/synmot.html
Provides detailed medical/genetic information for a variety of neuromuscular disorders. Primarily intended for medical professionals and is very technical.
Status Code: 302 - Location: http://neuromuscular.wustl.edu Edit listing [dmoz.org] - Report dead link [dmoz.org] - Edit Category [dmoz.org] |
