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MD-List  -
Mailing list to provide support for people affected by all different forms of Muscular Dystrophy.
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Christians With Duchenne Muscular Dystrophy -
Mailing list for Christians who have Duchenne Muscular Dystrophy.
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DMD Support List -
Mailing list to provide support for people affected by Duchenne Muscular Dystrophy.
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Duchenne Muscular Dystrophy Support eGroup -
International Rare Disease Support Network (IRDSN) eGroup for making friends, sharing information and providing support for persons affected by Duchenne Muscular Dystrophy.
Status Code: 200 Edit listing [dmoz.org] - Report dead link [dmoz.org] - Edit Category [dmoz.org] |
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Dysferlin -
Discussion group intended to give patients, families, researchers, and others the opportunity to share information, experiences, and advice about Dysferlin deficiency, which causes Miyoshi Distal Myopathy and Limb-Girdle Muscular Dystrophy type 2B.
Status Code: 200 Edit listing [dmoz.org] - Report dead link [dmoz.org] - Edit Category [dmoz.org] |
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FSH Friends Forum -
Mailing list for people affected by and having an interest in Facioscapulohumeral Muscular Dystrophy as well as other types of Muscular Dystrophy.
Status Code: 200 Edit listing [dmoz.org] - Report dead link [dmoz.org] - Edit Category [dmoz.org] |
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FSH Muscular Dystrophy -
Discussion group for people who have Facioscapulohumeral (FSH) Muscular Dystrophy, as well as family and friends.
Status Code: 200 Edit listing [dmoz.org] - Report dead link [dmoz.org] - Edit Category [dmoz.org] |
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Limb Girdle Muscular Dystrophy -
Discussion group open to anyone interested in making friends, sharing information and providing support for persons affected by Limb Girdle Muscular Dystrophy.
Status Code: 200 Edit listing [dmoz.org] - Report dead link [dmoz.org] - Edit Category [dmoz.org] |
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MDA All the Way -
Discussion group where anyone affected by a neuromuscular disease can meet old friends and make new friends.
Status Code: 200 Edit listing [dmoz.org] - Report dead link [dmoz.org] - Edit Category [dmoz.org] |
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Muscle Disease -
Discussion group for parents with children that have a Congenital Muscular Dystrophy, whose child was born with a muscle disease that does not fit any of the other Muscular Dystrophy Association's 40 identifed neuromuscular diseases.
Status Code: 200 Edit listing [dmoz.org] - Report dead link [dmoz.org] - Edit Category [dmoz.org] |
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Myotonic Dystrophy 2 -
Discussion group for those who have genetically confirmed cases of Myotonic Muscular Dystrophy type 2 or who have received a preliminary diagnosis for it.
Status Code: 200 Edit listing [dmoz.org] - Report dead link [dmoz.org] - Edit Category [dmoz.org] |
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PROMM (Proximal Myotonic Myopathy) -
Discussion group for people with proximal myotonic myopathy (myotonic dystrophy type 2) or people associated with them. Discussions center around symptomology, adaptation and variant manifestation.
Status Code: 200 Edit listing [dmoz.org] - Report dead link [dmoz.org] - Edit Category [dmoz.org] |
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The Muscular Dystrophy Forum -
An online support group for people affected by any neuromuscular condition.
Status Code: 200 Edit listing [dmoz.org] - Report dead link [dmoz.org] - Edit Category [dmoz.org] |
