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A Guide for Parents -
This booklet is for people with someone in their family who has Duchenne muscular dystrophy. Includes an overview, medical and surgical care, general care, emotional support and every day living.
Status Code: 200 Edit listing [dmoz.org] - Report dead link [dmoz.org] - Edit Category [dmoz.org] |
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Becker Muscular Dystrophy Information Exchange - http://www.beckermusculardystrophy.org
Serves as a place for persons with Becker Muscular Dystrophy to exchange information and communicate with others about the disease.
Status Code: 302 - Location: /?22fad780 Edit listing [dmoz.org] - Report dead link [dmoz.org] - Edit Category [dmoz.org] |
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DMD Information - http://www.beckermusculardystrophy.org
Duchenne muscular dystrophy, an introduction, the causes, biology reviews, and treatment options.
Status Code: 200 Edit listing [dmoz.org] - Report dead link [dmoz.org] - Edit Category [dmoz.org] |
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DMD Pioneers - http://www.dmdpioneers.org/
Resource website about Prolonged Survival for people with Duchenne Muscular Dystrophy.
Status Code: 302 - location: http://www.dmdpioneers.org/moving.htm Edit listing [dmoz.org] - Report dead link [dmoz.org] - Edit Category [dmoz.org] |
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Duchenne/Becker Muscular Dystrophy - http://www.dmdpioneers.org/
Includes key facts and animated slide shows of causes, diagnosis and treatment.
Status Code: 200 Edit listing [dmoz.org] - Report dead link [dmoz.org] - Edit Category [dmoz.org] |
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FSH-MD Support Group - http://www.dmdpioneers.org/
Provides support for those with Facio Scapulo Humeral and their carers.
Status Code: 200 Edit listing [dmoz.org] - Report dead link [dmoz.org] - Edit Category [dmoz.org] |
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General Practice Notebook - Duchenne muscular dystrophy - http://www.dmdpioneers.org/
Clinically-oriented information.
Status Code: 200 Edit listing [dmoz.org] - Report dead link [dmoz.org] - Edit Category [dmoz.org] |
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Living For Today, Preparing For Tomorrow - http://www.dmdpioneers.org/
Reference for parents of boys with Duchenne Muscular Dystrophy. Along with practical and health-related articles are poetry and personal stories.
Status Code: 200 Edit listing [dmoz.org] - Report dead link [dmoz.org] - Edit Category [dmoz.org] |
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MDA Ride For Life - http://www.dmdpioneers.org/
Pennsylvania ride to benefit the Muscular Dystrophy Association. Information on results, money raised and its distribution. Sponsored by the Eastern Harley-Davidson Dealers Association, held annually in May.
Status Code: 200 Edit listing [dmoz.org] - Report dead link [dmoz.org] - Edit Category [dmoz.org] |
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Muscular Dystrophy - http://www.dmdpioneers.org/
Details about Nectar "T", not a cure for MD, but aims to delay its progress, gaining valuable time until the medical community will solve the problem permanently. Multilingual site.
Status Code: 200 Edit listing [dmoz.org] - Report dead link [dmoz.org] - Edit Category [dmoz.org] |
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Muscular Dystrophy Campaign - http://www.dmdpioneers.org/
Muscular Dystrophy Campaign for Government funding. This has information about efforts to increase government spending for muscular dystrophy in the UK.
Status Code: 200 Edit listing [dmoz.org] - Report dead link [dmoz.org] - Edit Category [dmoz.org] |
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National Registry of Myotonic Dystrophy and FSHD Patients and Family Members - http://www.dmdpioneers.org/
Connecting researchers and patients. Participation, purpose, investigators, personnel and contact information.
Status Code: 200 Edit listing [dmoz.org] - Report dead link [dmoz.org] - Edit Category [dmoz.org] |
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NINDS Muscular Dystrophy Information Page - http://www.dmdpioneers.org/
Muscular Dystrophy (MD) information sheet compiled by the National Institute of Neurological Disorders and Stroke (NINDS).
Status Code: 200 Edit listing [dmoz.org] - Report dead link [dmoz.org] - Edit Category [dmoz.org] |
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Prevention of Pulmonary Morbidity for Patients With Duchenne Muscular Dystrophy - http://www.dmdpioneers.org/
Study evaluating the effects of a new respiratory management protocol on respiratory morbidity and hospitalization rates for patients with Duchenne muscular dystrophy. From the American College of Chest Physicians.
Status Code: 200 Edit listing [dmoz.org] - Report dead link [dmoz.org] - Edit Category [dmoz.org] |
