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Coping With Epilepsy -
Peer discussion and support forum. Includes news headlines and a chart of alternative treatment options.
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Epilepsy Discussion Board -
A forum for people affected by this disorder.
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Epilepsy-L List -
An E-mail based support group for people with epilepsy and those who care about, and for them.
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EYiE - http://www.eyie.org
An IBE project with the objective of giving a voice to young people around the world. Offers a chat room, contacts and information.
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HealingWell.com: Epilepsy - http://www.eyie.org
Message boards and chat dedicated to sharing information, offering support, and coping strategies to better manage this disease. Community moderated by volunteers.
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HealthBoards.com: Epilepsy Message Board - Archived - http://www.eyie.org
Past message board for information and support on epilepsy.
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IDEA League Family Network - http://www.eyie.org
This forum is intended for carers and parents of individuals with Dravet Syndrome, also known as Severe Myoclonic Epilepsy of Infancy and other related sodium channel disorders. Members must register.
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Ninemsn Groups: Doose Syndrome - http://groups.msn.com/doosesyndrome
On-line support group about Doose. Offers forum, gallery and calendar of events.
Status Code: 302 - Location: http://login.live.com/login.srf?lc=1033&id=24002&ru=http%3A%2F%2Fgroups%2Emsn%2Ecom%2FDAV%... Edit listing [dmoz.org] - Report dead link [dmoz.org] - Edit Category [dmoz.org] |
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Vns Message Board - http://groups.msn.com/doosesyndrome
A message board designed for information exchanged related to the Vagus Nerve Stimulator.
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Yahoo! Groups: Parents of Kids with Epilepsy - http://groups.msn.com/doosesyndrome
Combined e-mail forum for parents of children with epilepsy.
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Yahoo! Groups: Seizure Alert Dogs - http://groups.msn.com/doosesyndrome
Uniting people who benefit from seizure alert or assistance dogs as well as people with epilepsy who benefit from a dog's companionship. Welcoming people who want to learn more about these wonderful dogs.
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Yahoo! Health Groups: Adults with Epilepsy - http://groups.yahoo.com/group/adultswithepilepsy/
For adults (18 and older) to discuss their experiences with epilepsy, including causes, treatment and coping skills.
Status Code: 302 - Location: http://health.groups.yahoo.com/group/adultswithepilepsy/ Edit listing [dmoz.org] - Report dead link [dmoz.org] - Edit Category [dmoz.org] |
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Yahoo! Health Groups: Childhood Epilepsy - http://groups.yahoo.com/group/childhoodepilepsy/
E-mail list with connected on-line access forum is intended to support parents and other care-givers of children diagnosed with all forms of epilepsy.
Status Code: 302 - Location: http://health.groups.yahoo.com/group/childhoodepilepsy/ Edit listing [dmoz.org] - Report dead link [dmoz.org] - Edit Category [dmoz.org] |
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Yahoo! Health Groups: Christian Epilepsy Prayer Group - http://groups.yahoo.com/group/ChristianEpilepsyPrayerGroup/
Support e-mail forum for those seeking epilepsy guidance, whilst incorporating Christian values and beliefs.
Status Code: 302 - Location: http://health.groups.yahoo.com/group/ChristianEpilepsyPrayerGroup/ Edit listing [dmoz.org] - Report dead link [dmoz.org] - Edit Category [dmoz.org] |
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Yahoo! Health Groups: Christian Epilepsy Support - http://groups.yahoo.com/group/Christian-Epilepsy-Support/
Christian oriented support for people with Epilepsy or family and friends of people with Epilepsy.
Status Code: 302 - Location: http://health.groups.yahoo.com/group/Christian-Epilepsy-Support/ Edit listing [dmoz.org] - Report dead link [dmoz.org] - Edit Category [dmoz.org] |
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Yahoo! Health Groups: Dating and Married Life with Epilepsy - http://groups.yahoo.com/group/Dating-and-Married-Life-with-Epilepsy/
Discussing issues that come up when people with epilepsy are dating and married, including handling different situations, embarrassment, children, and fear.
Status Code: 302 - Location: http://health.groups.yahoo.com/group/Dating-and-Married-Life-with-Epilepsy/ Edit listing [dmoz.org] - Report dead link [dmoz.org] - Edit Category [dmoz.org] |
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Yahoo! Health Groups: Doose Syndrome - http://groups.yahoo.com/group/doosesyndrome/
For parents of children who have, or who may have Myoclonic-Astatic Epilepsy, otherwise known as Doose Syndrome, a rare, severe, intractable epilepsy of early childhood.
Status Code: 302 - Location: http://health.groups.yahoo.com/group/doosesyndrome/ Edit listing [dmoz.org] - Report dead link [dmoz.org] - Edit Category [dmoz.org] |
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Yahoo! Health Groups: Epilepsy - http://groups.yahoo.com/group/doosesyndrome/
For people with or know someone with Epilepsy. A place to talk, share stories and gain moral support. All ages welcome.
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Yahoo! Health Groups: Epilepsy Advocates - http://groups.yahoo.com/group/Epilepsy_Advocates/
Made up of people that suffer from Epilepsy, parents of children with Epilepsy, people whom have previously had Epilepsy and friends of those suffering from Epilepsy.
Status Code: 302 - Location: http://health.groups.yahoo.com/group/Epilepsy_Advocates/ Edit listing [dmoz.org] - Report dead link [dmoz.org] - Edit Category [dmoz.org] |
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Yahoo! Health Groups: Epilepsy Approach - http://groups.yahoo.com/group/Epilepsy_Advocates/
Supporting those to make decisions about treatment options from surgery, medication to alternative and herbal remedies.
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Yahoo! Health Groups: Epilepsy Approach 1 - http://health.groups.yahoo.com/group/EpilepsyApproach1
Supporting those with this condition through discussion about treatment options, including surgical and alternative.
Status Code: 302 - Location: http://health.groups.yahoo.com/group/EpilepsyApproach1/ Edit listing [dmoz.org] - Report dead link [dmoz.org] - Edit Category [dmoz.org] |
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Yahoo! Health Groups: Epilepsy Chat - http://groups.yahoo.com/group/epilepsychat/
Social on-line venue for connecting people effected by epilepsy.
Status Code: 302 - Location: http://health.groups.yahoo.com/group/epilepsychat/ Edit listing [dmoz.org] - Report dead link [dmoz.org] - Edit Category [dmoz.org] |
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Yahoo! Health Groups: Epilepsy Circle - http://groups.yahoo.com/group/epilepsychat/
E-mail and forum support group for those with an interest in epilepsy, whether it is for you, a family member, a friend, pupil or a child that has a seizure disorder or epilepsy.
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Yahoo! Health Groups: Epilepsy Cured - http://groups.yahoo.com/group/epilepsychat/
Shares information on curing and preventing epilepsy and seizures for patients, parents, children, and family members of those suffering from epilepsy.
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Yahoo! Health Groups: Epilepsy Kids - http://groups.yahoo.com/group/epilepsychat/
Offering support and information for parents of children diagnosed with any form of epilepsy.
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Yahoo! Health Groups: Epilepsy Medicin - http://health.groups.yahoo.com/group/epilepsy_medicin
Designed to share experiences about treatment options, research and medications.
Status Code: 302 - Location: http://health.groups.yahoo.com/group/epilepsy_medicin/ Edit listing [dmoz.org] - Report dead link [dmoz.org] - Edit Category [dmoz.org] |
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Yahoo! Health Groups: Epilepsy Support and Education - http://health.groups.yahoo.com/group/epilepsy_medicin
A community to help bring people with epilepsy from all corners of the world to share experiences, thoughts, and provide information. All ages are welcome and you don't have to have epilepsy to join.
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Yahoo! Health Groups: Epilepsy Support Group - http://health.groups.yahoo.com/group/epilepsy_medicin
For those considering or who have tried surgery treatment options for epilepsy. Includes free membership, message boards and chat room. Also joining instructions.
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Yahoo! Health Groups: Epilepsy Surgery - http://health.groups.yahoo.com/group/epilepsy_medicin
Support email forum for those considering surgery or have had brain surgery or Vagus Nerve Stimulator surgery as a treatment option for epilepsy. Registration required.
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Yahoo! Health Groups: Epilepsy Surgery Group - http://health.groups.yahoo.com/group/epilepsy_medicin
For those who have had brain surgery, Vagus Nerve Stimulator surgery, and Gamma Knife Radiosurgery, although you do not need to be a surgery candidate to become a member.
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Yahoo! Health Groups: Epilepsy Surgery Group1 - http://health.groups.yahoo.com/group/EpilepsySurgeryGroup1
Catering for those who have had surgery as a treatment option or those considering this option.
Status Code: 302 - Location: http://health.groups.yahoo.com/group/EpilepsySurgeryGroup1/ Edit listing [dmoz.org] - Report dead link [dmoz.org] - Edit Category [dmoz.org] |
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Yahoo! Health Groups: For Parents of Children with Epilepsy - http://health.groups.yahoo.com/group/ForParentsofChildrenwithEpilepsy
Email forum allowing parents to support other parents in raising children with this condition.
Status Code: 302 - Location: http://health.groups.yahoo.com/group/ForParentsofChildrenwithEpilepsy/ Edit listing [dmoz.org] - Report dead link [dmoz.org] - Edit Category [dmoz.org] |
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Yahoo! Health Groups: ISGrads - http://health.groups.yahoo.com/group/ISGrads
Supporting those with children who have overcome Infantile Spasms, also known as West Syndrome an often debilitating form of epilepsy.
Status Code: 302 - Location: http://health.groups.yahoo.com/group/ISGrads/ Edit listing [dmoz.org] - Report dead link [dmoz.org] - Edit Category [dmoz.org] |
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Yahoo! Health Groups: Ketogenic - http://health.groups.yahoo.com/group/ISGrads
For parents, family members, and care givers who are using the Ketogenic Diet as a means of control for epilepsy or seizure disorders.
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Yahoo! Health Groups: Kuekids Australia - http://health.groups.yahoo.com/group/ISGrads
E-mail list is to help parents, families and friends of children using the ketogenic diet who may also have food intolerance problems.
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Yahoo! Health Groups: Nonepileptic - http://health.groups.yahoo.com/group/ISGrads
Supporting those who have seizures but aren't considered to have epilepsy.
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Yahoo! Health Groups: Parents of Kids With Epilepsy UK - http://health.groups.yahoo.com/group/ISGrads
Forum connecting parents of children with a wide variety of epilepsies around the worldwide. Incorporating poles, databases and photo gallery. Members must apply.
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Yahoo! Health Groups: Rare Epilepsy Syndromes - http://health.groups.yahoo.com/group/ISGrads
To help educate and support the families dealing with rare epilepsy's. Some of these include: ESES/CSWS, LKS, LGS and Benign Rolandic.
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Yahoo! Health Groups: Real Epilepsy - http://health.groups.yahoo.com/group/ISGrads
A group based in Indiana. Epilepsy and seizure disorder resources and support.
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Yahoo! Health Groups: SMEI - Dravet Syndrome - http://health.groups.yahoo.com/group/ISGrads
Email and online forum for friends and family members of those with Dravet Syndrome. Members must apply.
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Yahoo! Health Groups: TLE - http://health.groups.yahoo.com/group/ISGrads
Discussion of temporal lobe epilepsy and/or partial complex seizure disorder. For sufferers and friends/family of sufferers.
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Yahoo! Health Groups: Wives of Men with Epilepsy - http://health.groups.yahoo.com/group/ISGrads
Addressing problems, offering support and encouragement to the wives of those with epilepsy.
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Yahoo! Health Groups: World of Epilepsy - http://health.groups.yahoo.com/group/ISGrads
For people around the globe who have epilepsy and would like to share their recent or previous experience with epilepsy.
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