McKay Orthopaedic Research Laboratory - http://www.uphs.upenn.edu/orl/research/fop/ Summaries of current research projects at the University of Pennsylvania.
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SFGate - http://sfgate.com/cgi-bin/article.cgi?file=/c/a/2005/05/31/BONES.TMP San Francisco Chronicle article describes the disease, includes anecdotes about the lives of several patients.
Status Code: 301 - Location: http://www.sfgate.com/cgi-bin/article.cgi?file=/c/a/2005/05/31/BONES.TMP