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A Diary about Marfan's -
Marfan's patients diary of the diseases events in her life. Includes a list of links.
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American Heart Association - Marfan's Syndrome -
Includes definition, problems with blood vessels and cardiac valves, treatment, lifestyle changes, and links to other heart related conditions.
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Canadian Marfan Association -
Information, articles, events, a patient survey, and products. Also includes an article on Pharaoh Akhenaten who was believe to have the disease.
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International Federation of Marfan Syndrome Organizations -
A global information center providing links to Organizations around the world.
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Life and Issues of Marfan's Syndrome -
Personal site by which describes the pathology and gives a bit of advice.
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Living With Marfans -
This site is an in depth look into the life of someone who has Marfan Syndrome and what they have learned along the way.
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Marfan Association UK -
The support association in the UK for this genetic condition which can affect the heart, eyes and connective tissue.
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Marfan Support and Information -
Support group in New South Wales, Australia.
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Marfan Syndrome - http://www.medicinenet.com/Script/Main/Art.asp?li=MNI&ag=Y&ArticleKey=411
A Question-Answer format page of information.
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Marfan Syndrome - http://www.medicinenet.com/Script/Main/Art.asp?li=MNI&ag=Y&ArticleKey=411
A guide to this connective tissue disease.
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Marfan Syndrome - http://www.medicinenet.com/Script/Main/Art.asp?li=MNI&ag=Y&ArticleKey=411
Article from eMedicine.
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Marfan Syndrome - http://www.medicinenet.com/Script/Main/Art.asp?li=MNI&ag=Y&ArticleKey=411
Online chapter from The Merck Manual of Medical Information.
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Marfan Syndrome Forum - http://hometown.aol.com/bjthaler6/myhomepage/
Describes the author's personal experiences with this Syndrome and asks readers to share their experiences. Also include links for further research.
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Marfan Syndrome: Does Diet Play a Role - http://hometown.aol.com/bjthaler6/myhomepage/
Explores the idea that the disease is affected not by the fibrillin gene, but by one's diet.
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Marfan-List - http://hometown.aol.com/bjthaler6/myhomepage/
Information about an e-mail mailing list. Also includes links to other online support groups.
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Marfans Research Foundation - http://www.marfansresearchfoundation.ie
Irish charity with information on fund raising activities and the condition.
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MFS Type 1 Fibrillin Gene - http://www.marfansresearchfoundation.ie
Major resources listed as well as genetic information.
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National Marfan Foundation - http://www.marfan.org/
Providing accurate and timely information about the disorder to patients, family members and physicians.
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Polish Marfan Association - http://www.marfan.org/
General information including dealing with pregnancy with the disease. Also has contact information for the association and links to other organizations.
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Questions and Answers about Marfan Syndrome - http://www.marfan.org/
From the National Institutes of Health.
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Slovak Marfan Association - http://www.marfan.org/
The association provides a network of patients, relatives and doctors in Slovakia, informs and helps patients to improve the medical care.
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South African Marfan Syndrome Organisation - http://www.marfan.org/
Information in English and Afrikaans,including an interactive diagnosis tool that allows for an accurate diagnosis.
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Swedish Marfan Association - http://www.marfan.org/
Here you can find plenty of information the disease including symptoms and other disorders that are similar to Marfan's. Also contains information about the Swedish Association.
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The Mystery of Akhenaten: Genetics or Aesthetics? - http://www.marfan.org/
A history of the pharaoh along with theories applied to what he may have had, including Marfan's.
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Univ. of Washington - Marfan Syndrome - http://www.orthop.washington.edu/arthritis/types/marfan/01
What the disease is and includes the impacts on daily life.
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