Katie's Journey - Katie has Shwachman-Diamond Syndrome and needs a bone barrow transplant. Find disease information and links to support organizations.
Shwachman-Diamond America - http://www.chariot.net.au/~dna/angelica.html Profiles SDA, a nonprofit that educates doctors and families about shwachman-diamond syndrome and also supports research.
Shwachman-Diamond Syndrome Family/Friends - http://groups.yahoo.com/group/shwachmansyndrome/ An email list for families, friends, parents and individuals affected by Shwachman-Diamond Syndrome.
Status Code: 302 - Location: http://health.groups.yahoo.com/group/shwachmansyndrome/
Shwachman-Diamond Syndrome International - http://groups.yahoo.com/group/shwachmansyndrome/ Support organization helping the victims of this disease. Provides a network for families to receive information, advocacy, and emotional support, and keep abreast of the most current medical information available.
The CaF Directory - http://groups.yahoo.com/group/shwachmansyndrome/ A definition of Shwachman syndrome, its inheritance pattern, pre-natal diagnosing and a support group in the United Kingdom.