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DebRA International  -
Dystrophic Epidermolysis Bullosa Research Association. A voluntary, non-profit organization dedicated to creating awareness and providing support for families affected by Epidermolysis Bullosa (EB). Includes treatment and care information, latest research, organization history, and forums.
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Cristina's Castle in the Clouds -
Information and support for those interested in a skin disorder called epidermolysis bullosa. Message board and also a list of camps for children with this disorder.
Status Code: 403 Edit listing [dmoz.org] - Report dead link [dmoz.org] - Edit Category [dmoz.org] |
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DebRA Australia, Queensland Branch -
Features disorder information, organization background, publications, photo gallery, and information about the NSW branch.
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DebRA Canada -
Includes articles, news, and information about this genetic disorder.
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DebRA of America -
Offers information, news, newsletters, support, and resources.
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DebRA UK -
Features organization background, information about the disorder, fundraising and research details, and news.
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EB Info World -
Information, mailing list, pictures, and help for new parents.
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EB Medical Research Foundation -
A volunteer, nonprofit foundation dedicated to the support of medical research about this disorder. Includes information about research, videos, and organization information.
Status Code: 200 Edit listing [dmoz.org] - Report dead link [dmoz.org] - Edit Category [dmoz.org] |
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Epidermolysis Bullosa - Through the Eyes of a Patient -
A young woman presents medical information, research updates, photographs, recipes, and support group listings, as well as her own experiences with the condition.
Status Code: 403 Edit listing [dmoz.org] - Report dead link [dmoz.org] - Edit Category [dmoz.org] |
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International EB Forum -
Includes downloadable articles and booklets as well as links of interest. Also offers password-protected forums for professionals.
Status Code: 200 Edit listing [dmoz.org] - Report dead link [dmoz.org] - Edit Category [dmoz.org] |
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Jonathan's EBzone -
The author shares her son Jonathan's crusade and life with Epidermolysis Bullosa (EB), a rare genetic disorder.
Status Code: 200 Edit listing [dmoz.org] - Report dead link [dmoz.org] - Edit Category [dmoz.org] |
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Yahoo! Groups: EBworld - http://health.groups.yahoo.com/group/EBworld/
Mailing list support group for parents, patients, and those interested in learning about disease.
Status Code: 302 - Location: http://groups.yahoo.com/group/EBworld/ Edit listing [dmoz.org] - Report dead link [dmoz.org] - Edit Category [dmoz.org] |
