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Health: Conditions and Diseases: Chronic Illness (59)
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Web Sites

A Day in a Life with Chronic Illness -
A personal account of daily events aims to promote better understanding.

Status Code: 200
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Biotoxin Illness -
Ritchie Shoemaker, MD and his research team share new peer-reviewed medical research and clinical treatment protocols along with an online screening test for biotoxin illnesses such as CFIDS, Fibro and Lyme.

Status Code: 200
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Center for Research on Chronic Illness -
Current research by the Carolina School of Nursing, pilot projects, publications on specific diseases as well as in general on preventing and managing chronic illness in vulnerable people.

Status Code: 200
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Chronic Conditions -
Advice on managing the health team, staying as healthy as possible, trying complementary therapies, maintaining a sense of humor, working at being optimistic.

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Chronic Disease Management -
Model based on cooperation between providers to improve patient health and outcome. The Calgary Health Region also advises on regional strategy, community care coordinators, and patient class details.

Status Code: 200
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Chronic Disease Management - http://www.healthservices.gov.bc.ca/cdm/
British Columbia resources for physicians, patients and researchers. Includes success stories, self-management program, reports, research and Chronic Care Model.

Status Code: 302 - Location: http://www.health.gov.bc.ca/cdm/
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Chronic Disease Prevention - http://www.healthservices.gov.bc.ca/cdm/
Overview by National Center (USA) offers statistics, state programs, risk surveillance and risk factors per state.

Status Code: 200
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Chronic Disease Surveillance in Canada - http://www.healthservices.gov.bc.ca/cdm/
Background paper also proposes multi-partnered data base renewal (2003).

Status Code: 200
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Chronic Disease: Forming Healthy Relationships - http://www.healthservices.gov.bc.ca/cdm/
Advice for doctors and health workers on treatment and support of chronic ill patients.

Status Code: 200
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Chronic Disease: Prevention and Management - http://www.cdmcalgary.ca
Calgary Health Region to host its second international conference from October 29 to November 1, 2007. Registration opens October 2006.

Status Code: 200 - Location: http://www.cdmcalgary.ca/index.html
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Chronic Health Conditions not a Barrier to Successful Aging - http://www.cdmcalgary.ca
Advice on 'successful aging' with good management of several chronic conditions by HealthLink, the Medical College of Wisconsin.

Status Code: 200
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Chronic Illness - http://www.cdmcalgary.ca
Journal providing a forum in which researchers from a wide range of disciplines, clinicians, policy makers, and people living with chronic illness come together to clarify the common principles underlying the experience and management of chronic illness. Has current and past issues.
Status Code: 200
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Chronic Illness Alliance Inc. - http://www.chronicillness.org.au/
A representative body for Australian organizations. Promotes details of campaigns and activities, and offers news, articles and information.

Status Code: 200 - Location: http://www.chronicillness.org.au/index.htm
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Chronic Illness Coping - http://www.chronicillness.org.au/
Lists articles including lessons from Christopher Reeve, treatment of whole person, psychological control, and coping techniques.

Status Code: 200
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Chronic Illness Tips - http://www.chronicillness.org.au/
A personal account of strategies for daily living.

Status Code: 200
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Chronic Illness: Acceptance Is the First Step Toward Healing - http://www.chronicillness.org.au/
Short description of the day to day acceptance process.

Status Code: 200
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Coping with a Chronic Illness in your Family - http://www.chronicillness.org.au/
Advice to family members, including communication, financial matters, independence and taking charge.

Status Code: 200
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Coping with Chronic Illness - http://www.chronicillness.org.au/
An academic paper discusses illness in terms of stages, with a description of each in terms of its relevance to patients.

Status Code: 200
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Coping with Chronic Illness - http://www.chronicillness.org.au/
The Fathers Network on how to deal with physical, emotional and spiritual aspects. Applies to anyone with a longterm disease.

Status Code: 200
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Coping with Chronic Illness - http://www.chronicillness.org.au/
Offers links to patient information and publications by the National Institutes of Health.

Status Code: 200
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Diet, Nutrition and the Prevention of Chronic Diseases - http://www.chronicillness.org.au/
Combined World Health Organization and Food and Agriculture Organization expert report on prevention of obesity, diabetes, cardiovascular diseases, cancer, dental diseases and osteoporosis.

Status Code: 200
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Expert Patients Programme for Long-term Patients - http://www.expertpatients.nhs.uk/
Self-management course for confidence, skills and knowledge to manage chronic health conditions. Provides newsletter, explanation of program, people's views.

Status Code: 302 - Location: http://www.expertpatients.co.uk/
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Guidance for People Facing Serious Illness - http://www.expertpatients.nhs.uk/
Handbook gives short, practical advice how to handle serious illness and dying.

Status Code: 200
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Health Action Network - http://www.expertpatients.nhs.uk/
A volunteer non-profit organization helping to rehabilitate people with chronic mental or physical illness into the community. Includes details of training and resources.

Status Code: 200
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Health Issues Unmasked - http://www.expertpatients.nhs.uk/
A weblog dedicated to exploring the issues behind the diagnoses, the statistics, and behind the headlines on chronic illness, health policy, and complementary and alternative medicine. By a journalist, Jacqueline L. Jones.

Status Code: 200
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Household Management Questions for Others with Chronic Illness - http://www.expertpatients.nhs.uk/
Practical advice on adjusting expectations, cleaning, time management and recommended books. Short thread in The New Homemaker.

Status Code: 412
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Illness, Disability and Social Inclusion - http://www.eurofound.eu.int/publications/files/EF0335EN.pdf
Evaluates policies on education, social security, employment, anti-discrimination, and independence. From the European Foundation for the Improvement of Living and Working Conditions.

Status Code: 301 - Location: http://www.eurofound.europa.eu/publications/files/EF0335EN.pdf
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Improving Chronic Illness Care - http://www.eurofound.eu.int/publications/files/EF0335EN.pdf
Research and resources, including a model to promote interaction between patient and care givers. Essential elements are the community, self-management support, decision support and clinical information systems.

Status Code: 200
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It's Your Life - http://www.stormpages.com/sbhagwat
E-book on chronic disease management available for free online reading or download.

Status Code: 301 - Location: http://www.stormpages.com/sbhagwat/
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Learning to Cope with Chronic Illness - http://www.stormpages.com/sbhagwat
Practical advice to patients and significant others.

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Learning to Live with a Chronic Condition - https://www.mylifepath.com/producer/documentlibrary/MR15300.pdf?sec=medsup&pg=help
Patient advice on communication with the health team, deciding on a treatment plan, and minimizing costs. From the Lifepath Information Series.

Status Code: 301 - Location: https://www.blueshieldca.com/producer/documentlibrary/MR15300.pdf?sec=medsup&pg=help
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Living with Chronic Illness - https://www.mylifepath.com/producer/documentlibrary/MR15300.pdf?sec=medsup&pg=help
Personal advice on making adjustments and maintaining hope.

Status Code: 200
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Living with Chronic Illness and Disease - https://www.mylifepath.com/producer/documentlibrary/MR15300.pdf?sec=medsup&pg=help
Personal perspective on living with chronic disease. Articles cover getting through each day, relaxations, tips, work, stories.

Status Code: 200
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Living with Chronic Illness and Pain - https://www.mylifepath.com/producer/documentlibrary/MR15300.pdf?sec=medsup&pg=help
Explains how lifestyle changes can be effective in self-managing a condition. From Men's Health Peer Education.

Status Code: 200
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Living with Long Term Illness - https://www.mylifepath.com/producer/documentlibrary/MR15300.pdf?sec=medsup&pg=help
Tips and ideas on dealing with a chronic condition in daily life. Personal site.

Status Code: 200
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Managing Long Term Conditions (Chronic Disease Management) - https://www.mylifepath.com/producer/documentlibrary/MR15300.pdf?sec=medsup&pg=help
A National Primary and Care Trust Development Funds program aimed to produce personalized care plans involving all medical and associated disciplines. No longer updated, it still contains valuable information for health care professionals.

Status Code: 200
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Managing your Chronic Illness - http://www.healthservices.gov.bc.ca/cdm/patients/managing.html
British Columbia's patient information with links to programs.

Status Code: 302 - Location: http://www.health.gov.bc.ca/cdm/patients/managing.html
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Next steps after your diagnosis: finding information and support - http://www.healthservices.gov.bc.ca/cdm/patients/managing.html
Consumer health information for people with a disease or chronic condition on how to obtain reliable treatment information by the Agency for Healthcare Research and Quality (USA).

Status Code: 200
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Palliative Care Council of South Australia - http://www.healthservices.gov.bc.ca/cdm/patients/managing.html
Resources to comfort, relieve pain and distress for people who are dying, and to support parents, families and friends in approaching death and healing grief.

Status Code: 200
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Patient Self-Management - Chronic Disease Care - http://www.healthservices.gov.bc.ca/cdm/patients/managing.html
Overview of research and publications showing evidence patient self-management interventions lead to improved health status, increased patient satisfaction and reductions in hospital and emergency room costs, listed by the Californian Health Care Foundation.
Status Code: 200
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Poem, Pain Management, Chronic Illness - http://www.healthservices.gov.bc.ca/cdm/patients/managing.html
Poem about coping with pain using relaxation and imagery.

Status Code: 200
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Preventing Chronic Disease: Public Health Research, Practice and Policy - http://www.healthservices.gov.bc.ca/cdm/patients/managing.html
A peer-reviewed Journal by the National Center for Chronic Disease Prevention and Health Promotion in the United States. Contains essays, original research, special topics, case studies. Also available as PDF.

Status Code: 200
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Preventing Disability in the Elderly With Chronic Disease - http://www.ahcpr.gov/research/elderdis.htm
Discusses outcome of patient self management program. Education and lifestyle changes improve health, preserve functions and reduce costs. Also in PDF (published in 2002).

Status Code: 301 - Location: http://www.ahrq.gov/research/elderdis.htm
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Report of the Working Group on Long-Term Care - http://www.ahcpr.gov/research/elderdis.htm
US Department of Labor, Advisory Council Report to recommend policy changes and education on broad scope of findings.

Status Code: 200
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Stanford Self-Management Programs - http://www.ahcpr.gov/research/elderdis.htm
Center develops, evaluates, and disseminates community-based, peer-led, programs for people with all kinds of chronic diseases. Part of School of Medicine, Stanford University, California.

Status Code: 200
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Ten Steps for Coping with a Chronic Condition - http://www.ahcpr.gov/research/elderdis.htm
Harvard Health Publication Letter. Patient oriented advice.

Status Code: 200
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Yoga For Chronic Illness - http://www.ahcpr.gov/research/elderdis.htm
Article explains how yoga helps to maintain and restore health by stretching and breathing.

Status Code: 200
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