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Health: Conditions and Diseases: Cardiovascular Disorders: Heart Disease: Congenital (50)
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Health: Conditions and Diseases: Cardiovascular Disorders: Congenital Anomalies (5)
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Web Sites

Adult Congenital Heart Association -
Information, resources and support for adults with congenital heart disease.

Status Code: 200
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Congenital Heart Disease Information and Resources - http://www.tchin.org
Interactive forums, Internet links, and peer-reviewed informational materials for families, adults with CHD, and health professionals.

Status Code: 301 - Location: http://tchin.org/
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About.com - http://heartdisease.about.com/blchd.htm
Information about congenital heart defects, and February 14th being recognized as a day for hearts.

Status Code: 302 - Location: http://heartdisease.about.com/webapps/whereabout/heartdisease.about.com/blchd.htm
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AMA: Statement for Health Care Professionals - http://www.americanheart.org/presenter.jhtml?identifier=1210
Guidelines for evaluation and management of common congenital cardiac problems in infants, children, and adolescents. From the committee on congenital cardiac defects of the council on cardiovascular disease in the young.

Status Code: 302 - Location: http://www.americanheart.org/error.jhtml?identifier=1210&_requestid=3420113
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American Heart Association - http://www.americanheart.org/presenter.jhtml?identifier=1210
The AHA website is a simple introduction to the concept of congenital heart disease, with layperson explanations of the various conditions, tests for diagnosis and treatment options.

Status Code: 200
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CHD Awareness Day - http://www.tchin.org/aware.htm
The Children's Health Information Network has brought global attention to the dreaded problem of Congenital Heart Defects by a co-ordinated effort from parents and families of CHD victims.

Status Code: 301 - Location: http://tchin.org/aware.htm
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CHD Support Graphics - http://heartdisease.about.com/chdgraphics.htm
A collection of banners, buttons, dividers and even e-cards to spread awareness about birth defects of the heart.

Status Code: 302 - Location: http://heartdisease.about.com/webapps/whereabout/heartdisease.about.com/chdgraphics.htm
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Congenital Heart Disease Treatments - http://www.americanheart.org/presenter.jhtml?identifier=4580
Short and simple explanations of the different procedures used in treating heart birth defects.

Status Code: 302 - Location: http://www.americanheart.org/error.jhtml?identifier=4580&_requestid=3321405
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Congenital Heart Diseases Their Study and Treatment - http://www.redtail.net/owc
A most complete manual, text and graphics by Oliver W. Caminos M.D. (1999)

Status Code: 301 - Location: http://www.redtail.net/owc/
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CongenitalHeartDefects.com - http://www.redtail.net/owc
Information, resources and support for families and individuals dealing with congenital heart defects. Definitions of CHDs and medical terms, list of support groups and hospitals.

Status Code: 200
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Coping with Congenital Heart Disease in Your Baby - http://www.redtail.net/owc
Article with some useful information, published by The American Academy of Family Physicians.

Status Code: 200
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Feeding Your Infant With Congenital Heart Disease - http://www.redtail.net/owc
American Heart Association gives details on baby's growth, how to feed your baby, feeding tips, breastfeeding, formula feeding, tube feeding, starting solid foods, asking for help, heart medication and feeding and looking ahead.

Status Code: 200
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Fontan Operation - http://www.redtail.net/owc
Devoted to explaining this procedure, used to treat complex birth defects of the heart like hypoplastic right and left heart syndrome and single ventricle.

Status Code: 200
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Grown Up Congenital Heart Patients Association (GUCH) - http://www.redtail.net/owc
Provides support and advice to adults and teenagers born with CAD. Offers information sheets on topics such as pregnancy, insurance and careers, a message board and quarterly newsletter.

Status Code: 200
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Heart Defects: Truncus Arteriosus Type 1 - http://www.redtail.net/owc
Information, diagram, symptoms and medical treatment, from the Children's Heart Institute.

Status Code: 200
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Heart Disease Online - http://www.redtail.net/owc
A collection of articles on the different kinds of congenital heart defects, including their treatment by surgery, written in simple, non-technical language.

Status Code: 200
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Hearts Of Hope - http://www.redtail.net/owc
Stories of children born with a very serious heart defect known as hypoplastic left heart syndrome (HLHS). Help in finding relevant information and links, especially in Australia.

Status Code: 200
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HLHS Information - http://www.redtail.net/owc
Treatment options for newborns with Hypoplastic Left Heart Syndrome. Includes questions to ask the hospital, surgeon, and insurance company.

Status Code: 403
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International Society for Adult Congenital Cardiac Disease - http://www.isaccd.org/
The site offers resources for doctors and other health-care professionals in the field of ACHD and for ACHD patients. Visitors can search for ISACCD members.

Status Code: 301 - Location: http://www.isachd.org/
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MedicineNet: Congenital Heart Disease - http://www.isaccd.org/
Detailed look at the causes, symptoms, types, and treatments.

Status Code: 200
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Miami Children's Hospital - http://www.isaccd.org/
Department of Cardiovascular Surgery provides a list of surgeries performed along with actual pictures and a lot of information about each. A form on-site to ask questions or give comments.

Status Code: 200
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Minimal Invasive Congenital Heart Surgery - http://heartdisease.about.com/library/weekly/aa011198.htm
An article about treating birth defects of the heart using this techniques.

Status Code: 302 - Location: http://heartdisease.about.com/webapps/whereabout/heartdisease.about.com/library/weekly/aa0...
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Our Little Braveheart - http://heartdisease.about.com/library/weekly/aa011198.htm
Jake was born with Tetralogy of Fallot. This is his story along with some pictures.

Status Code: 200
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Palliative Operations - http://heartdisease.about.com/library/weekly/aa112397.htm
The early staged operations for patients with this congenital heart defect, Tetralogy of Fallot, that lead up to the final correction surgery.

Status Code: 302 - Location: http://heartdisease.about.com/webapps/whereabout/heartdisease.about.com/library/weekly/aa1...
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Persistent Pulmonary Hypertension of the Newborn - http://neonatal.peds.washington.edu/NICU-WEB/pphn.stm
A definition along with look at the diagnosis, treatment and the prognosis, from the University of Washington Academic Medical Center.

Status Code: 302 - Location: http://depts.washington.edu/nicuweb/NICU-WEB/pphn.stm
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Prenatal Diagnosis of Heart Problems - http://www.fetalcardiology.co.uk
UK site on the diagnosis of defects in the unborn child, prior to birth. Details timing of scans, high risk groups, diagrams of cardiac conditions, and includes support groups.

Status Code: 200 - Location: http://www.fetalcardiology.co.uk/index.html
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Resources from California State University - http://www.fetalcardiology.co.uk
Very list of congenital heart diseases with links to sites dealing with that particular disease. Information to help parents and provide support.

Status Code: 200
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The Charlie Ramsey Research Fund - http://www.fetalcardiology.co.uk
Set up to raise money for research for complex congenital heart defects. Read Charlie's story, fund raising details, and new.

Status Code: 200
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Ventricular Septal Defect - http://heartdisease.about.com/library/weekly/aa020898.htm
VSD is one of the commonest congenital heart defects, where there's a hole in the wall between the two lower chambers of the heart. An article from About.com with Richard N. Fogoros.

Status Code: 302 - Location: http://heartdisease.about.com/webapps/whereabout/heartdisease.about.com/library/weekly/aa0...
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